National Clinical Audit of Seizures and Epilepsies for Children and Young People: Epilepsy12 Report (England and Wales 2019-21)
The National Clinical Audit of Seizures and Epilepsies for Children and Young People has published its latest Epilepsy12 combined organisational and clinical report for 2019-21 (cohort 3). It focuses on children and young people who had a first paediatric assessment for a suspected seizure between 1 December 2019 and 30 November 2020. The audit then follows the patients for 12 months of subsequent care.
The report found that 70% (1379 out of 1974) of children and young people diagnosed with epilepsy had evidence of an updated and agreed comprehensive care plan. Other key findings include:
- 65% (75 out of 115) Trusts and Health Boards had an adult epilepsy specialist nurse routinely involved in the transition of young people to adult services
- 5% (53 out of 1124) children and young people between the age of 5-15 years and diagnosed with epilepsy had an identified mental health condition
- 28% (38 out of 135) children and young people diagnosed with epilepsy who met surgical referral criteria had a referral for surgical evaluation.
The report also found that 54% (1058 out of 1974) children and young people diagnosed with epilepsy, obtained their EEG within four weeks of request. As such the report goes on to recommend that all Health Board and Trusts, OPEN UK and ICSs should review the waiting times for standard EEG in their services; ensuring sufficient capacity and pathways in place to achieve EEG within four weeks of referral.
Read the full report: You can read the report by clicking on the link below.
Stay up-to-date: For notifications of future reports from HQIP, sign up to our mailing list.
